Update 8/6/2012

Good afternoon,
   It is about 6pm on Monday Aug 6 2012. A few things have happened since I last updated this. Last wed the first of Aug I got a sudden of a very severe headache. I was at work when it happened and had to come home. It was also the first very severe headache I have had since surgery. It was very disappointing and frustrating at the same time. I was happy because I was able to control the headache with the medications I have here at home. Since the first things have been up and down and I have constantly been adjusting my settings. It seams as if when I find a setting that overrides the pain after a while the back of my head and neck become very uncomfortable. Then when I turn my stimulator down I have to deal with the pain. I just cant seem to find a right setting. Before last wed I had not changed the stimulator settings at all for a few weeks.  I talked to my rep Jacob the other day and he feels he may have a solution to the problem. What he thinks is going on is that my brain has got used to the " frequencies" being used. Jacob said this is very common to happen and they can adjust the programing. It is also being considered of putting in programing that has a constant changing frequencies. I called this am to the Kaiser clinic that provides support to the patients with neuro stimulators  and they were able to give me an apt for tomorrow am. I was very excited to hear that they were able to make these adjustments so fast. I am hoping for the best, but I do know it will not be a permanent fix for the problem. I do keep reminding my self of the statement given to me by my neurosurgern during my pre-op apt, " Your condition is complex and advanced, this procedure will not erase the headaches completely but it will help control the severity of them."  I have been very thankful that they were able to place the stimulator and that the surgery and every thing has cost me only 20 dollars out of pocket. Also because of researching the devices I was aware that a type of incident like this could happen.   Over the last week my pain levels have also been up and down. Also dealing with pressure behind my right eye and problems with the brightness (which are both common with this condition). I have also been very sore in the neck and back area following the direction of the wire placement (I have been told this will get better over time) Not too much else to update on, but I will be updating tomorrow after my apt to give every one an update. I hope ever one is doing great and I want to thank every one for their continued support!
:) JR