Tuesday, April 30, 2013

1 year and 5 days post surgery

Good evening :)  First off I can not believe that it has been one year since I had my stimulator surgery.  For the most part I have been doing really well since the re programing and having the stimulation on both the left and right sides have helped alot and the pain in my head and neck has been very minimal to non existent.  Of course I still have the " bad days" but the pain is not nearly as intense as it was before surgery. The biggest battle with occipital neuralgia (ON) is the severity can increase at any time. I will be fine one minute and then next feel like I have been hit by a semi-truck. As some of you may already know on April 11th I was diagnosed with fibromyalgia. Getting this diagnosis was very hard emotionally and was very frustrating. I am glad to have a reason for why I had such a spike in full body pain (over the last few months) I have been on medication since April 12th and I am starting to feel much better. Fibro causes pain all through out the body. It also causes alot of problems with sleep cycles. Most of my pain is at the base of my neck and head ( from ON) and my middle back,legs and feet ( from fibro). Every day I pretty much have pain all through out my body, the severity is just different in certain areas. Since I have been taking the medication it has helped decrease the pain levels and has helped ALOT with sleep. I was also able to discontinue my other sleeping medication (YAY)  The DR told me it would take about a month to see the full results of the medication, but so far so good :) I have been very excited that the medication seems to be working well and have been doing alot of research of fibro. As some have saw May 12th is fibro awareness day, so please pass the word and feel free to ask any questions you may have. To end this I want to say thank you again to my fantastic wife Nicole ( my number 1 supporter) I also want to thank all my family and friends for providing encouragement every day!! I send thanks to each and every one of you :) I will report back (hopefully with good news) in a few weeks and give feedback how the medication is working!
I hope every one is well and please continue to be safe so you don't have to, " see me in my office ;) "
JR

2 comments:

  1. My husband has ON and we were supposed to to to Mayo clinic for a stimulator trial but insurance denied effectiveness. How did you get your nerve stimulator surgery? Pay yourself or fight insurance? We have been battling ON for 14 years and it is getting unmanageable. Any advice is appreciated

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  2. HI I have ON and am in the UK. It's a really tricky one to treat here too. Very few have stimulators fitted even on our NHS. I am awaiting an operation and on Gabapentin. Did you get dizziness too?

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